Organization Details

The Muscular Dystrophy Association combats neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education. With national headquarters in Tucson, MDA?s organizational portfolio includes: The funding of some 220 hospital-affiliated clinics and 36 MDA/ALS Research & Clinical Centers, the ALS Clinical Research Network and the DMD Clinical Research Network Financial support of nearly 350 research projects around the world . MDA is the first nonprofit organization honored with the American Medical Association?s Lifetime Achievement Award ?for significant and lasting contributions to the health and welfare of humanity.? Network of Clinics: MDA clinics offer an interdisciplinary team approach toward initial diagnosis and follow-up care. Individuals affected by any of the disorders in MDA?s program have access to a nationwide network of some 220 hospital-affiliated clinics and 36 MDA/ALS Research & Clinical Centers staffed by top health professionals. These experts can advise about all aspects of medical management of neuromuscular disease, including occupational, speech, respiratory and physical therapy. MDA assists with repair of wheelchairs or leg braces when prescribed by MDA clinic physicians, and with the purchase of communication devices.

Summer Camps: MDA provides young people age 6-17 in your community with summer camping activities geared to the special needs of those with neuromuscular diseases. In 2008, MDA sponsored 80 camp sessions for more than 4,300 campers. MDA camps are staffed by health professionals who volunteer their services.

Campers are accompanied by volunteer counselors, who often continue their friendships with campers on a year-round basis.

Professional and Public Health Education: MDA seeks to increase knowledge and awareness of neuromuscular diseases among scientists, physicians, nurses and therapists, and the public. The Association sponsors scientific publications dealing with neuromuscular disorders; convenes international scientific meetings concerned with neuromuscular disease research; and holds conferences of MDA clinic directors and their associates. It also publishes and distributes a vast array of educational materials. For more information, go to www.mda.org or www.als-mda.org.

Address

1140 Avenue Of The Americas
New York, NY 10036
(212) 689-9040